This book is the world’s first book written for people with the rare autoimmune disease, neurosarcoidosis. It is available as both a paperback, and a PDF ebook (from Lulu only):
The first part of the book contains medical information about neurosarcoidosis, diagnosis and treatment, as well as information on coping with the disease. The medical information has been verified by an immunologist and neurologist who are specialists in the field.
The second part of the book contains experience stories from ten patients from around the world.
The book is paperback, 176 pages long, and includes a glossary, bibliography and index. Fonts and layout have been designed to help readers with vision impairment. You can view a preview of the book on the Lulu page, look for the ‘Preview’ link just under the cover image.
The PDF ebook has an interactive table of contents and index, and external links to the websites mentioned in the book.
I just finished The Patient’s Guide to NeuroSarcoidosis. I want to thank Denise for writing such an informative book about neurosarc while putting into beautiful, concise words what patients and their families go thru. I also want to thank each patient who shared their personal experience with the disease. My husband was diagnosed with sarcoidosis in 2010, neurosarc was suspected but not confirmed until 2012. It has been quite a journey. This book would definitely be helpful for patients and loved ones who navigate the journey together. — Marty Wainwright, Feb 2015
Having recently be diagnosed with neurosarcordosis I would highly recommend this book for people with the condition and any one in their life that wants to support and understand what their friend or family member is going through. It’s great having all the information in one, easy to read place and I found reading about other people’s experiences made me feel much less isolated and on my own. Easy to read and very informative, I can’t recommend this highly enough! — Emma Grosberg, Jan 2017
This book has helped me greatly to understand and manage neurosarcoidosis. It’s comforting to read other patient’s stories and know that I’m not alone. I’ve also been able to share this book with family so that they can better understand what I’m going through. I highly recommend this book to anyone who has been newly diagnosed, had neurosarcoidosis for years or even has suspected NS. — Amazon review, Nov 2015
- Publisher: Sutherland Studios
- Available in: Paperback, PDF
- 176 pages, with glossary, references and index
- ISBN: 978-0-9872152-5-3
- Published: 1 January 2015
This is a flyer which you can print out, and give to friends, family, and your medical team, if you’d like to tell them about the book. There are 3 flyers per page. You can download it by clicking on this link, and then saving the file to your computer.
If you would like to proclaim your neurosarcie status on Facebook and elsewhere, you may like to download and use this profile pic. Simply control click on the image, and select ‘Save as…’ to save it to your computer. Then you can upload it to Facebook etc. It may need resizing a little in Facebook to avoid cutting off the edges of the image.
April is Sarcoidosis Awareness month, and I’ve made these two banners for you to use. Since neurosarc is a subsection of sarcoidosis, I figure April is neurosarcoidosis awareness month too — I left the month off the neurosarc one, in case you just want to have it at times when it’s not April! Simply save these images to your computer, and then upload to Facebook.