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A Guide for Adults with Hip DysplasiaNow available from Lulu! |
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Foreword by Mr Johan Witt Paperback ISBN: 978-0-9872152-0-8 456 pages Paperback : $39.90 US
Visit our Hip Dysplasia Shop to get yourself some cool swag, raise public awareness of this difficult condition, and do some good! 50% of our profits are donated to the International Hip Dysplasia Institute, to help fund their research and education programs. Book PDFsThese PDFs are provided for all to use. Permission is granted to use these for personal use, or to copy and provide to patients. If you wish to include them in a publication of any kind, please contact us for permission.
Hip Links
Denise's total hip replacement
Sophie's periacetabular osteotomy |
Endorsements" A Guide for Adults with Hip Dysplasia is an important, timely and helpful book for patients or families that have been touched by hip dysplasia. Until now, information for adults has been limited, especially compared to the amount of information available for children with hip dysplasia. This book fills that void in a caring way, that is informative and easy to read. "Recent medical research has documented that dysplasia is a common cause of hip arthritis in young adults. Advances in orthopedic surgery have also made it possible to preserve hips in many cases, rather than replacing them at a young age with artificial joints. These new developments, how to evaluate them, and how to cope with them have been explained clearly, and with practical suggestions that anyone can follow. "This book should be recommended reading for doctors and patients alike. Sophie West and Denise Sutherland have given a true gift to anyone with hip dysplasia." Professor of Orthopaedic Surgery " A Guide for Adults with Hip Dysplasia is an incredibly complete resource about hip dysplasia and its treatment in adulthood. Speaking as an adult with hip dysplasia, there isn't a single question I can think of that this book doesn't address. Not only does this illustrated book clearly explain hip anatomy and surgical treatments, it goes beyond the medical context to offer practical advice and emotional support for patients before, during, and after surgery. "The authors' friendly tone and the many quotes they've included from patients who have been through treatment really bring this book to life. Thank you Denise and Dr. Sophie for writing this wonderful book. It's a welcome addition to my bookshelf." Betsy Miller, Author of The Parents' Guide to Hip Dysplasia You can now read reviews of the book here. As we have self-published this book, we really rely on your help in promoting the book. Reviews and "star ratings" are very welcome! If you would like to submit a review, you can either do this via the book's Lulu page, our Goodreads page, or by emailling Denise (to be put up on this website). Reviews posted on other sites will also be posted here. We have a Facebook Page for the book, as well, where you can ask questions of Denise and Sophie, and we will announce things like sales, and competitions. We'd love to chat with you over there! What is Hip Dysplasia?Once known as Congenital Dislocated Hip (CDH), and now called Developmental Dysplasia of the Hip (DDH), hip dysplasia is a structural deformity of the pelvis. People with DDH have abnormal hip sockets, which causes no end of problems. The head of the femur isn't held securely in the hip socket, for starters. If the condition is picked up in a baby, it can be treated with special splints, braces, plaster, and sometimes surgery. However, detection can be very difficult, and the condition is often missed. What has become apparent more recently is that hip dysplasia can develop and worsen over many years, only presenting in adulthood. A person with undetected hip dysplasia can develop hip problems in their 20s, 30s, or 40s. Pain when walking, hip pain, stiffness, restricted range of motion, and other symptoms become more troublesome and disabling. It is often hard to get a clear diagnosis, as hip dysplasia experts are few and far between. The main treatment for adults with hip dysplasia - whether they were diagnosed as babies and now have recurring problems, or they have an adult diagnosis - is surgery of some sort or other. A Periacetabular Osteotomy (PAO) is a rather drastic operation where the surgeon cuts and realigns the pelvis to create a better hip socket, with screws holding the bones in place. Hip resurfacing and total hip replacement are the only options if the hip joint has become arthritic. What's the Book About?A Guide for Adults with Hip Dysplasia is the book we wish we'd had years ago. There are no books written for adults with DDH, just for parents of children with the disorder (we highly recommend this one). We really hope our book will be a great help to the thousands of hip patients who often feel isolated and alone. So what's in the book? For full details, check out the Table of Contents. But in brief, it's a medical guide to the biology and anatomy behind hip dysplasia, and the treatments that are available. It's a "how to" guide - how to manage with increasing disability, how to prepare for surgery, how to cope in hospital and back home, and even some projects to make. We hope it will be a friend in times of need, with sage advice and words of encouragement from many people who have already been there, with plenty of tips and tricks, a large section on emotional and psychological challenges and strategies, and a chapter for carers. We've included over 400 quotations from other hip patients to illustrate sections of the book, and to get a real "patient's eye" perspective on the whole experience. Included on this page are some of the quotations from adult hip dysplasia patients (which had to be left out of the book for reasons of space). The book also contains over 50 illustrations by Denise, and x-rays.  How to get out of a car safely after hip surgery 
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Who are we?
Denise Sutherland is an author, indexer, graphic designer, and puzzle writer, living in Australia. She has bilateral hip dysplasia. Her left hip is worse than her right, and she had a great deal of surgery on it during her early childhood. She finally had it replaced in 2009, when she was 45. That's her left hip in the x-ray, on the left there. Currently her right hip isn't bothering her too much, but it will eventually need to be replaced as well.
Miss Sophie West MRCS MBBS is a trainee surgeon currently working in orthopedics at Royal London Hospital. She was diagnosed with bilateral hip dysplasia when she was 27, and has had two PAO surgeries within a year. That's her right hip in the second x-ray on the left. You can read more about her experiences as both an orthopaedic surgeon and a hip dysplasia patient in this BMJ article Bilateral developmental dysplasia of the hips We met each other on the Yahoo group HipWomen, and as we both wanted to write about hip dysplasia, we decided to pool our resources and efforts, and write a book together. With the help of Skype and email, we're just about there, and have enjoyed the journey! ErrataThe quotations attributed to Jill in Chapter 16 were not written by her, but by Fiona. Our deep apologies for any embarrassment or inconvenience caused. Unfortunately there was a layout error with the first few dozen books printed. This means that the chapters start on the left hand page instead of the right hand page, and (most critically) the page numbers are on the wrong corners of the pages (in the gutter instead of on the outer corners). The book is still entirely correct in terms of content, and the index pagination is all correct, it's just that the layout is off by one page, and page numbers will be a bit hard to find. If your book has this error and it bothers you, post your copy of the book to us, along with your postal address, and we will happily send you a new one, free of charge. Our postal address is: Sutherland Studios |
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Last Modified: 02 February 2012 |
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