This book is the world’s first book written for people with the rare autoimmune disease, neurosarcoidosis. It is available as both a paperback and a PDF ebook from Lulu:
The first part of the book contains medical information about neurosarcoidosis, diagnosis and treatment, as well as information on coping with the disease.
The second part of the book contains experience stories from ten patients from around the world.
The book is paperback, 176 pages long, and includes a glossary, bibliography and index. Fonts and layout have been designed to help readers with vision impairment. You can view a preview of the book on the Lulu page, look for the ‘Preview’ link just under the cover image.
The PDF ebook has an interactive table of contents and index, and external links to the websites mentioned in the book.
This is a flyer which you can print out, and give to friends, family, and your medical team, if you’d like to tell them about the book. There are 3 flyers per page. You can download it by clicking on this link, and then saving the file to your computer.
If you would like to proclaim your neurosarcie status on Facebook and elsewhere, you may like to download and use this profile pic. Simply control click on the image, and select ‘Save as…’ to save it to your computer. Then you can upload it to Facebook etc. It may need resizing a little in Facebook to avoid cutting off the edges of the image.
April is Sarcoidosis Awareness month, and I’ve made these two banners for you to use. Since neurosarc is a subsection of sarcoidosis, I figure April is neurosarcoidosis awareness month too — I left the month off the neurosarc one, in case you just want to have it at times when it’s not April! Simply save these images to your computer, and then upload to Facebook.