A Guide for Adults with Hip Dysplasia is the book we wish we’d had decades ago. This is the first book for adults with this disabling condition. It is written in easy to understand plain English, without masses of medical jargon. It is available worldwide as both a paperback and a PDF eBook edition (both published on Lulu.com). The information it contains is also very helpful for anyone having a total hip replacement, for any reason, especially younger patients.
The book is rather hefty — 456 pages long, and includes 19 chapters with over 50 illustrations. The PDF edition includes an interactive table of contents, internal links, and index, as well as hyperlinks to websites. The PDF works on any computer or device with a PDF reader, and you can download it immediately!
We’ve written a bunch of free PDFs that you can download, and put together links to hip dysplasia resources for you, too. And find us on Facebook, we’re always happy to answer questions.
What the doctors are saying
Medical professionals who work with hip dysplasia patients are finding the book useful as well, giving a unique insight into experiences of many patients. Many surgeons worldwide recommend it to their adult dysplasia patients:
A Guide for Adults with Hip Dysplasia is an important, timely and helpful book for patients or families that have been touched by hip dysplasia. Until now, information for adults has been limited, especially compared to the amount of information available for children with hip dysplasia. This book fills that void in a caring way, that is informative and easy to read.
This book should be recommended reading for doctors and patients alike. Sophie West and Denise Sutherland have given a true gift to anyone with hip dysplasia.
Charles T. Price, M.D.
Professor of Orthopaedic Surgery University of Central Florida
College of Medicine Medical Director, International Hip Dysplasia
Institute Orlando, Florida, USA
This is a well written book addressing a very unique clinical condition affecting significant number of people all over the world, [written] from a patient’s perspective. The condition itself can remain undiagnosed and can come as a surprise for many patients in their adulthood. The fact that a major procedure is involved in its treatment, adds to the worries of our patient population.
While discussions with a clinician can help to some extent, this book gives comprehensive information about this clinical condition, and thereby reduces [patients’] anxiety. The book makes the reader feel that s/he can reach for a helping hand throughout the treatment process.
Mr Sanjeev Patil
Consultant Orthopaedic Surgeon
Southern General Hospital, Glasgow, Scotland
- Foreword by Mr Johan Witt, orthopaedic surgeon, London
- ISBN: 978-0-9872152-0-8
- Published by Sutherland Studios, December 2011
- 456 pages
- US Trade: 6″ x 9″ (15 x 23 cm)
- Includes glossary, cited references, and a comprehensive index
What’s in the book?
You can see all of the preliminary pages (including the table of contents) and Chapter 1 for yourself, in the Preview on Lulu.com (the link is just under the cover image).
In brief, the book has 19 chapters, and is a medical guide to the biology and anatomy behind hip dysplasia, and the treatments that are available. It is also a very practical book, helping you to:
- manage your life with increasing disability
- negotiate at work and school
- cope with the emotional challenges of hip dysplasia
- prepare for surgery
- pack for hospital
- cope with difficult room mates in hospital
- travel home after surgery
- live well with hip restrictions
- get back to normal life.
We’ve included over 400 quotations from other hip dysplasia patients to illustrate sections of the book, and to get a real “patient’s eye” perspective on the whole experience. These patients generously offer their sage advice and encouragement for you. We even found a couple of guys to contribute (most patients are women, but not all!)
The book has over 50 illustrations by Denise, and x-rays. There is a whole chapter written for carers. There is also a chapter of practical projects you can make, such as a bed ladder and heat packs. It has cited references (in case you want to do further reading), a glossary, and a comprehensive index.
Who are we?
Denise had already started to plan this book when she met Sophie on the Yahoo group HipWomen in late 2009. Sophie was also planning on writing for patients. We decided to pool our resources and efforts, and write the book together. It was a challenging two years, but we enjoyed the journey!
Denise Sutherland is an author, editor, indexer, and graphic designer living in Canberra, Australia. She has bilateral hip dysplasia. Her left hip was worse than her right, and she had a great deal of surgery on it during her early childhood. She finally had it replaced in 2009, when she was 45. That’s her left hip in the x-ray. Her left hip is now great, but her right hip has become dysplastic recently too, and will eventually need to be replaced.
Dr Sophie West MRCS MBBS is a radiology registrar who has previously trained in orthopedic surgery. She lives and works in London in the UK. She was diagnosed with bilateral hip dysplasia when she was 27, and had two PAO surgeries within a year.
That’s her right hip with the pins, in the x-ray. You can read more about her experiences as both an orthopaedic surgeon and a hip dysplasia patient in this article Bilateral developmental dysplasia of the hips, published in the British Medical Journal in 2011. She also has a British disability swimming classification and is training for national and international swimming competitions.
We are both International Advisory Board members of the International Hip Dysplasia Institute.